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Monday, 4 December 2017

Crohn's & Colitis Awareness Week

From the 1st-7th December it's Crohn's & Colitis Awareness Week and if you have been reading my blog for the past few years, you'd know that in February 2014 I was diagnosed with Ulcerative Colitis (UC) after 18 Months of being misdiagnosed with IBS.

There are a few posts I've done about my journey with UC but to summarise, Over the past three and a half years I have had a lot of ups and downs. I've tried different medications, had to go in for three colonoscopies, moved onto biologic medication, I'm currently in a flare up that I've been in since February this year and they believe I now also suffer with proximal constipation. I do have an update coming early next year once I have more answers but this illness has completely changed my life.

I've developed really bad anxiety and depression, I have lost jobs, lost friends, I don't date and I genuinely feel a lot of guilt day in and day out as it's not only affected my life but of those around me.

With this post I wanted to share some articles from Metro, this isn't sponsored by them but the people who have written these articles explain things a lot better than I ever could. They express exactly how I and others with IBD feel about a variety of situations. I feel it is important to educate ourselves with this as every 30 minutes someone is diagnosed with either Crohn's or Colitis 

With all this information it's shocking that yet more city centres are closing public bathrooms, more cafes and restaurants are not letting you use theirs without purchase and disability toilets are not only becoming far and few between but they are not as equipped for various disabilities (not just Crohn's and Colitis).

I'm hoping the situation will change soon as personally I am currently unable to see how I can get around to not only socialise but shop and pick up things I need without a colostomy bag. There are some places or parts of town I cannot go to as there are no public bathrooms close by.

I'm hoping you read some of the articles and maybe understand the illness a little more, it's classed as a Chronic illness / Invisible illness because it's life long and there are days you cannot see anything physically. Yes you can drastically lose weight but most days I can put makeup on and dress nicely and physically seem fine although I'm in excruciating pain on the inside. It's because of that physical ok appearance you find people don't take the illness seriously.

As always, thanks for reading...

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