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Saturday, 1 February 2014

I Have Something To Share // My IBD Journey

I know that I had so many plans and ideas for blogging over Christmas and didn't follow through with them. I thought I'd create this post to explain a little bit about something I have kept personal and only shared with family and close friends.
Around 18+ months ago, during my second year of University, I had been experiencing upset stomachs and problems with needing the bathroom urgently. For a few weeks I did think it was dietary, I was living the life of a student, eating out and drinking. After confiding in some friends they urged me to get checked out as the eating changes hadn't helped and other symptoms I was experiencing wasn't normal. I went to my local walk in center as getting a GP appointment was difficult at the time. After being examined I was told I was having a bad experience with constipation and was sent on my way with a laxative. This didn't help and before stating my next semester at University, I was able to get a GP appointment. 

I had blood tests done and he concluded it was more to do with Food Sensitivity and Irritable Bowel Syndrome. Since then I was back and forth with more tests, different medications, eliminating food, but nothing was helping. I was very stressed, trying to finish university, working and I was feeling very low.


It wasn't until graduation the symptoms started to get worse but by that time I had become very constrained to where I'd go and what I'd do. I spent my week either at work or at home. I didn't go out and socialise as I was very scared about either not getting to a bathroom in time or suddenly being unable to move with the pain. Where I did go, I felt safe, my home is my home if anything happened like a sudden low point or a struggle with the pain, I could stay in bed. At work (to which at the time I had two jobs) I was surrounded by so much support and the most lovely people. For a few hours each day I was able to push everything to the back of my mind. I knew there was a bathroom nearby and I knew if I felt very unwell I could confide in management. Then something hit me...


I was trying so hard to push it all back and be normal that I didn't realise that the symptoms weren't just worse but also changing. As soon as I felt hunger I also felt sickness, even when I smelt certain foods I felt sickness. I was put off by food so quickly that I didn't eat properly, what I was eating wasn't giving me any nutrients and I lost weight quite drastically...
8 Pounds in just under 3 weeks. 

I went back to the doctors suspecting it was a stomach infection with the Food Sensitivity/IBS. I was told to drink lots of fluids and see if it passed. After it carried on persisting I went back to be given more tablets and go for more tests. This time I wasn't called back for a discussion of the results like previous, I was phoned and told I was being referred for an emergency appointment with the hospital.

Panic...that's all I was doing. It was a bit silly in a way as I didn't know why I was being referred until I went to the first appointment. I just couldn't help it, I felt very embarrassed by what was happening to me and I was having to then share that with another person.


At this moment in time I am waiting to go in for a endoscopy and have biopsies taken.

I'm very scared and feel very embarrassed by it but I know that it needs to be done and there's gas and air available. I'm currently on steroids to help with the inflammation (Prednisolone) and they are making me very tired and very hungry.

For my blog there's going to be a delay in posting but I will update with what is happening, 

I was umm-ing and aah-ing with the idea of posting this and putting it out there, but after researching IBD I came to find out it can affect people from such a young age and seeing other people's stories and journeys has been really reassuring. I am in no way an expert on the subject im just starting to learn everything myself but what I learn I will share and hopefully it can benefit someone.

As always, thanks for reading...

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